Ready to make an impact in the systemic mastocytosis (SM) community?
The goal of this survey is to better understand the experience of patients living with SM and how to strengthen relationships between patients and their healthcare providers (HCPs). Your participation will us help reach our goal.
Patients living with SM must be 18 years of age or older and have been diagnosed with any form of SM by a practicing healthcare provider.
Healthcare providers must have at least one patient living with SM currently under their care.
Click "Share the Survey" below if you want to send this survey to other people you know with SM or other healthcare providers working in the SM community.
Steering Committee Healthcare Providers
Co-Chairs
Massimo Triggiani, MD, PhD
Ruben Mesa, MD
Committee Advisors
Iván Alvarez-Twose, MD, PhD
Stéphane Barete, MD, PhD
Laurence Bouillet, MD, PhD
Patrizia Bonadonna, MD
Nauman Butt, MD
Mark Drummond, MD
Federica Grifoni, MD
Mar Guilarte, MD
Karin Hartmann, MD
Cristina Livideanu, MD
Deepti Radia, MD
Franziska Ruëff, MD
Steering Committee Patient Advocacy Groups








This survey is sponsored by Blueprint Medicines Corporation and was developed in partnership with systemic mastocytosis patient advocacy groups and healthcare providers in the European Union and the United Kingdom. In compliance with GDPR standards, survey results are de-identified and Blueprint Medicines will not have access to individual participant data.